Reims Opera
The Opéra de Reims is a theatre subsidised by the City of Reims, the Marne Departmental Council, the Grand Est Regional Council, and the Regional Directorate of Cultural Affairs (Ministry of Culture).
It is a lyric theatre that stages a variety of performances each season, including operas, operettas, concerts, and ballets.
Its director, deeply moved by the situation of people affected by Ollier–Maffucci, has chosen to regularly support the Association. We sincerely thank him.
Scène d’Oeuvres Lyriques
3, rue Chanzy
51100 REIMS
ECTS Charity Events Congress 2024 – Marseille
Professor Thomas Funck-Brentano, rheumatologist at Lariboisière Hospital in Paris, supported our association during this congress last May.
The European Calcified Tissue Society (ECTS) offers a unique platform for sharing cutting-edge scientific knowledge and innovations in the musculoskeletal field.
Its goal is to provide excellent learning and networking opportunities for basic, translational, and clinical scientists, as well as specialists, trainees, and allied health professionals.
An online donation campaign raised €1,300! A huge thank you, and a great opportunity to increase awareness of our association.
Paris Marathon 2024
Tom, aged 24 and living with Ollier disease, took on the challenge of running 42 km in the Paris Marathon to represent the association.
It was important to him to raise awareness of the association, and representing us gave him the strength to push beyond his limits for a better time!
He also wanted to send a message of support to patients and families who fight every day for a better future.
This event gathered nearly 70,000 runners this year.
Orange
Orange supported the association through specific actions (see photos).
Groupama
The Groupama Health Foundation Loire Bretagne provides financial support to promote research on the disease.
This includes the creation of a national database to improve patient monitoring and data Mécénats et Evénements
updates for better care and research.
St Christophe College Choir and Vocal Ensemble Concert
On 16 May 2008, at the CCS Theatre Hall.
For more information, you can download the poster and/or programme.
We would like to thank the residents of Saint Pierre and Miquelon, who mobilised last year and helped raise €3,000.
Private Exhibition by the “Doigts Noirs” Group
From 5 to 18 November 2007 – A calligraphy exhibition by various artists.
European Investment Bank – Luxembourg
Support received through a concert and conference event.
Concert and Conference in Amilly
On Tuesday, 3 May 2005, organised by Chantal Geuens:
“Hello,
I wish you a happy and healthy 2005.
My granddaughter LOUISE, aged 2½, is affected by Ollier–Maffucci disease. She underwent surgery on 22 November on her right leg (femoral osteotomy
with telescopic nailing and tibial osteotomy), followed by 45 days in a cast, to be removed on 10 January.
I am organising a benefit concert for the Association on Tuesday, 3 May 2005 at 8:30 PM in Amilly, with participation from the Amilly Music School and a conference by Professor Carlioz, orthopaedic surgeon at Trousseau Hospital.
On the same day, there will also be a charity sale of embroidery and patchwork, so I am calling on embroiderers and artists (working with paint, framing, or other materials).
The embroidery theme: teddy bears, hearts, alphabets, and useful items.”
Brussels Flea Market – 17 April 2005
Sabine Willems, member of the Children and Family Leisure Circle of the European Institutions, supported our cause.
Proceeds from the gift stall and buffet were donated to the Association to support research.
Grand Saint Nicholas Concert – Les P’tits Archets
On 5 December 2004, Sabine and Yves Willems, parents of Charlotte, age 4, along with Ludovic Vandpoel(Charlotte’s godfather) and Bernadette Vandpoel (director of the Braine L’Alleud Music School in Belgium), raised €2,800 in donations!
An extraordinary contribution — our heartfelt thanks.
This sum is dedicated entirely to research. A thousand thanks!