Joining the Ollier Maffucci Association is much more than a simple membership: it is an act of solidarity and commitment to advance medical research and improve the management of this pathology still too little known.
By becoming a member, you will have privileged access to the latest medical advances presented at the Annual General Meeting. You can ask questions directly to the expert doctors, and receive a full report to stay informed of progress.
But that’s not all! You will be part of an active and supportive community through a WhatsApp group where you can exchange with other patients, share your experiences and support each other. This network is a real asset for better daily living with the disease, while having access to valuable moral support and advice.
Most importantly, by joining our association, you are helping to strengthen our voice in the medical field. A large number of members gives more weight to the association, so that laboratories and researchers take our needs into account. Today, treatments are still too limited, mainly because we are not enough to attract the interest of laboratories.
Your membership is therefore crucial to advancing research and improving available treatments. Together, we can add weight and get the attention and resources needed for more responsive and effective care.
Don’t miss this opportunity to make a difference. Join the Ollier Maffucci Association and help change things for yourself, for other patients, and for the future of medical research.