Since March 2009, the Association has commissioned Mrs Martin to conduct a data collection procedure on the disease among the various members of the Association. Below you’ll find a document detailing this research, the questionnaire sent to all members and a document to help each respondent locate and name the skeletal bones affected.

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Elisabeth Martin
5 rond point de la Fontaine
49320 BRISSAC LOIRE AUBANCE
babetmartin@gmail.com

Sandra Dehaye
12, rue des Ouches
85300 SALLERTAINE
sandra.dehaye@sfr.fr