Eurordis
Non-governmental alliance of patient associations.
Association Ollier Maffucci England
SOLHAND
Solidarité Handicap autour des Maladies Rares.
Alliance Maladies Rares
NORSK MO- OGOLLIERSFORENING
Ollier-Maffucci Association Norway
IMAGINE INSTITUT
Fighting genetic diseases
VASCAPA
Association for the fight against vascular anomalies
ACAR
Ollier-Maffucci Association Italy