Everyone is unique! But together we are stronger!
Find out a few words from members with Ollier’s disease…
“Born in 1961, I have been traveling for 64 years in a “sculpted body” by Ollier’s disease. Co-founder of the association in 1998, I fight as best I can to make our voice heard “rare” alongside patients and their families.
My motto: “Let those who think it is impossible not disturb those who try.”
I have confidence in the future of basic and applied research.”
My motto: “Let those who think it is impossible not disturb those who try.”
I have confidence in the future of basic and applied research.”
– Elisabeth
My name is Mona, I am 19 years old and I have Ollier’s disease (affected left side) and 2 other rare diseases.
I had a few surgeries (wrist, fingers and femur) between 2014 and 2021 but since taking an inhibitor treatment, no more surgery is scheduled.
I love life, swimming, singing and taking care of my cat, Tara.”
– Mona
I’m Manon, I’m 21 and I have Ollier’s disease only on the left side of my body and I have some brain gliomas. But I have been lucky for a year now to take an inhibiting treatment that has significantly improved my health. Today, I am able to do everything I want despite some constraints due to the disease but I will be able to realize my dream soon, being a stewardess 
.”
.”– Manon
